Hey :)

My blog has had a makeover! A few people were struggling to read it as it was sending there eyes loopy so I kept changing the font but that did nothing, I realised the font wasn’t really the problem.. the background was so I am hoping that this is better for everyone.
The sun is shining and it looks nice outside for a change, weather has been abit crazy in Oldham over the weekend eh?

This week is CF week! 8th of May-14th of May!

I have a triple dare for you all, I want everyone to ask just one person at work if they know what cystic fibrosis is and if not.. explain it to them in your own terms :)
Go On.. I Dare Ya!

You could also help by getting EVERYONE in your workplace, right there in front of your eyes, to donate some money to The Cystic Fibrosis Trust. No matter how little or large there donation.. it all adds up!
There are tons of ways of doing this but the best way I know which is quite special to me is by going to Natalie Frenchum’s just giving page as she is my best friend’s mum and my second mum :’)
She is doing a parachute jump in Kent on the 11th Of June 2011!
The minimum donation that anyone can make is £2 by going to:-
I’ll also be posting a link to that site on my facebook for those of you who have me as a friend :)

Thank you to those of you who have already donated, it really does mean a massive amount to me, it should do to you too because when they do find the cure to CF. You will have all contributed to that, piece by piece every time I have asked you to out your hands in your pockets, whether that be at a outside charity concert or pestering you all on this here blog!
Thank you but its time you become the pestererer (Keith Lemon for you there) and mither your work pals, they can spare a couple of quid surely.. IT’S CF WEEK!!

Hey, I still dare ya, don’t think I’m forgetting!

I want this post to all stick together with my CF week flow.
I thought today’s blog could be about someone who is very special to me and who always seemed to be there at both the best of times and the worst during my time in the children’s hospital.

There have always been 3 specialised Cystic Fibrosis nurses but Jo was the one who showed that extra dedication, care and compassion. She didn’t just care about the task in hand and as you as a patient, but she cared for you as a person too. A person, who was dealing with all the hospital side of things but was still a teenager with some big dreams in her head!

She never, ever, EVER will forget the first time I saw her.
She was doing my port flush and she was fairly new to the team. She was asking me questions and getting to know me and she asked what I wanted to do when I got older. I, being me, went on with this massive speech about how I change my mind with regards to that more often than I eat sweets and by the time I’d finished telling her when I was 10 I wanted to be a paramedic, when I was 12 an interior designer etc
I had forgotten what the name for the profession I wanted to get into was so I tried to describe it and the best way I could was, “you know, one of those paper ladies!”
She looked a little flabbergasted but kept a straight face and proceeded to tell me I could be one of those now at 14 if I wanted.. so I looked at her quite strange and said, “No you need a few qualifications and degrees and things first!”
Jo looked really confused, as did I so we tried to work out where the confusion was coming from.
My mum came back from the pharmacy as we explained to her what we was talking about and how confused we were. She started laughing..
“She means she wants to be a journalist!”
Jo was in stitches because she thought I meant I wanted to do a paper round. :)
She tells that story to everyone we meet when we are together.. little bugger makes me look real stupid! Haha.

Jo has been like another mum when mine couldn’t be there.
I loved how I felt like I could tell her everything and anything and she’d understand and help and re-assure. She was an amazing listener and a great storyteller too. She was ferociously good at her job though!
I think I was having my port flushed again one time and it was around 6ish so Jo was already working late. She flushed my port but it hurt so much I shouted at her to stop because it hurt, so she took the needle out and inserted it again making sure she’d hit the back plate so it was defiantly in the right place, and began to flush again. “OUCHH!” I shouted.
It stung all across my collarbone and my chest!
She had a feeling that my port had blown and that I would be needing an operation to take it out and have a new one put in but she had to get a radiologist to perform a quick procedure first using some form of dye to see if it had fractures in the line.
The woman who was qualified to do it had gone home so Jo, rang her and I remember her telling this lady that she had to come back to hospital as it was an emergency!
In the end, the lady came back and Jo’s suspicions were right :)
I think Jo probably didn’t get home till 10 that evening!

On my last admission in the children’s hospital, Jo had come up for a chat after work one day because I was on my own. It was around 5pm because we were sat watching come dine with me on channel 4! I was just telling her I was a horrendous cook when I got a pain in my chest when I took a breathe in. It got worse very quickly and was very sharp! I was panting it was that painful to breathe in so she placed oxygen on me as my sats were going low and my heart rate was soaring! She placed the emergency button near my hand just in case before she left the room to try and get hold of the doctors before they left to go home. I had virtually every part of the doctoring team in my room within 5-10 minutes. The 3 consultant CF doctors were discussing what to do in abit of a panic I think. Jo was sat holding my hand and playing with my hair. I remember thinking, “oh my god, this must be bad if Dr Chan, Dr Panicar and Dr Thomas are all here!”
I had an ECG, an x-ray and a CT scan. Everything came back fine though and we never really knew what it was so the doctors said it was a form of trapped air between the chest wall and the lung cavity. All I know was that it was painful and lasted a couple of days before settling down.
Jo stayed for a little bit and then finally went home, LATE again! I bet her husband hated me, haha.

When I left the children’s hospital I bought Jo a me-to-you nurses watch to have on her uniform so she could never ever forget me :)
I still see her now & again when she gets chance to pop by and see me. She wears the watch I got her on her uniform and she even came to two charity do’s last year so I got to see her then too!

She is a very special lady who is strong and courageous. She can and will overcome anything. I miss her and I think of her everyday. She is always in my thoughts and my heart. I hope she feels strong, happy and beautiful because she is the most brave and positive and beautiful lady I know.
I love her <3

Next PostNewer Post Previous PostOlder Post Home


Post a Comment