sophie jayne April 05, 2014
sophie jayne April 02, 2014
today has been a real struggle. i have barely been off my oxygen all day and when i did it was so hard. as if someone was covering my nose & mouth whilst I was trying to breathe. i had extra inhalers and salbutamol nebs to see if they opened me up but they only have a 5 minute relief and then it came straight back. my chest is okay, there's no infection and i am hardly bringing anything up which is normal for me but I was slightly wheezy which isn't normal. i went to my aunties for tea but came back earlier than i anticipated due to needing oxygen and just not feeling comfortable because of that so i drove home, fell into the kitchen gasping and dropped my coat and mittens on the table desperate to get to my oxygen and that's how i have stayed all night. it's definitely gotten worse since going outside. i'm not quite sure what's going on so gonna give myself another day or so before possibly calling my cf team just to double check with them. for the time being lazy days on oxygen in pyjamas sound like the best course of action. a few people have mentioned about this air pollution so maybe that's contributing? I guess time will tell :)
Day 2: in my hand
i completely forgot to do this today and i just remembered last minute so grabbed my phone and all i had at hand was nothing at all. then I remembered something i think is quite random and unusual. i actually have a freckle in the palm of my hand near my little finger and ring finger. it's only small and quite pale but i have had it for aslong as i remember so must be a freckle.
i think it's quite unusual to have a freckle there isn't it?
i'll be better prepared tomorrow :)
sophie jayne April 01, 2014
i have been out of hospital for just under a week now. i've kept up with my feeds except missed one and have been going on the bike each day on level 1 for 15 minutes. my legs are killing so it must be doing something good if it's feeling bad :)
i just hope the hard work pays off and i have something to show for it when i go back in hospital in a couple of week. for now though, i have lots of plans to keep me busy & occupied. i try to cram as much into my weeks at home as i can before i head back into hospital for the usual 3 weeks stints. so much to do and so little time, haha.
Ages ago, i did a photo a day challenge and i really enjoyed doing them, they have me something to do in the days and got me taking photos which i always say i never do enough. So i thought i would give this a go again!
April photo-a-day challenge.
day 1: something purple
this is my gorgeous CF bracelet made by Katie Gammon.
Katie makes these bracelets and some other ones herself. i think they're so pretty and katie is such a lovely girl. she also has cystic fibrosis and received her amazing new shiny lungs after having a transplant last year. she's currently back in school and revising to sit her GCSE's after missing a huge chunk out of school due to ill health, transplant & recovery. all in all, she's doing amazingly well with a few bumps along the way but still as determined as ever.
i shall post a link to her Facebook page where you can browse through her bracelets and maybe buy yourself or a loved one a gorgeous purple CF bracelet :)
Katie Gammon's blog:- http://misskmgammon.blogspot.co.uk/
Katie Gammon's bracelet Facebook page:- https://www.facebook.com/pages/Katies-Bracelet-Boutique/1392554767654475?ref=ts&fref=ts