it's friday

IT'S FRIDAY it's felt like such a long week this week. had a few appointments which have gone very well. started a little regime that i really hope i actually stick too, it's hard though and my muscles are screaming today; let me tell you. had some tea at my mums. done SO MUCH SHOPPING, both online and my favourite type of shopping, food shopping. used my wheelchair three times only whilst out and about. looked after roxie (the little yorkshire terrier we used to have) while my auntie who looks after her now went on holiday....
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all grown up.

i started this blog when i was 15 years old and in year 11 at school. i was studying very hard for my GCSE's, recovering...
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hey stranger

it's been a long time. there has been a lot of things going on. there have been lots of thoughts in my head. there have been lots of emotions felt. i think i have figured it all out in my own mind now :) after the last admission i went home and i really struggled, more than i ever have before. i felt so breathless just at rest that i wanted to put my oxygen on so i kept that on 24/7 apart from when i went to bed at night, that's when i would swap to my A40 NIV machine. i was sleeping so much, i just felt so tired. i needed...
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day 5

day 5: not minethe radox bubble bath i used in my bath this evening is not mine. i borrowed some to soothe my aches. i...
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April Day 2

today has been a real struggle. i have barely been off my oxygen all day and when i did it was so hard. as if someone was...
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April photo challenge.

i have been out of hospital for just under a week now. i've kept up with my feeds except missed one and have been going...
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National Lung Allocation System Campaign

Last weekend, i wrote a status on my facebook saying, "more awareness is needed teaching the basics of transplantation and organ donation. the lack of knowledge in the general public is improving but it is still not where it needs to be" I said this because i had just been commenting on a status where someone shared there opinion and others where throwing in their two pennies worth but there was so many wrong "facts" being thrown about and i couldn't sit back and watch these people mould their opinion and views around things...
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dear daughter... journal of a lifetime.

for christmas 2013, one of my dad's gifts was something called "dear daughter.. a journal of a lifetime"  it is a hardback empty book that contains around 60 questions that are there to provoke a memory, a story, an idea, a thought.. basically an answer. i fill the book in and give it back to my dad once it's completed and he can keep it forever to look back on or to share :) i thought it was such a lovely idea and so cute.  i think i thought it was going to be easier to complete than i am finding it.  some...
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