Day 14

Good evening,

Today has been a lovely day. It started with being woken up by Roxie for a cuddle. She then curled up at the bottom of my bed while I snoozed. :’)
After physio I had a shower, washed, dried and straightened my hair; got dressed and then left to spend the afternoon with Chelsey who is back from Kent!! WOOHOOO.
We had pizza hut for lunch and then went on a huge drive in the sunshine with some great tunes for the afternoon. It was the best and I loved it.

Listening to some songs that take you back to a time or place and make you remember stuff.
How does it do that?
How can a song make you go right back in time and make you remember exactly how you felt, who you were with and where you were?
MADNESS!

On with today’s daily photo challenge:


Day 14:- A Picture Of Something That Makes You Happy.



There are many things that make me happy but I thought that this would be a great opportunity to introduce you properly to my boyfriend Arran.
This is Arran Barnes. A.K.A.. Barnesy, Booshy, Stumpy etc! ;)
I have been with him for 19 month this on the 14th.
He asked me out on the 14th of August 2009. He has previously asked me out in school but things just didn’t work.. too many people were involved and it was just the wrong place, wrong time. So we didn’t end up going out for very long atall. We both sat our GCSE’s and finished school and that’s when he asked me out again and I won’t lie to you.. I still had a twinkle in my eye for him so I said yes obviously ☺

Now I know I’m not the easiest of girls to go out with and I come with a few responsibilities, commitments and problems. I suppose everyone does but me more so then others. Times can be not so plain sailing when I go in hospital for weeks on end or when I just feel too poorly to do things or go places. I must be such a huge worry for him. I admire how he takes it all in his stride, deals with it and carries on. Nothing fazes him.. all this talk of transplant and things like that and he keeps positive, he keeps realistic and he sticks by me through it all. I know it’s a huge thing for him to take on being 18 years old. We are young and we still have our whole life ahead of us but I do think and feel that it has forced us to be closer in our relationship. I think I rely on him and depend on him a little more than other people our age would and therefore I suppose our relationship was bound to be serious quite early on.

He just makes me happy with everything he does. Every little stupid thing he says, every lovely.. *cough* cheesy *cough* ;) comment he makes, every positive thing he says to make my bad days in hospital or when I’m ill seem a little less bad. He makes me feel like I’m the most beautiful girl he has ever seen, even when I look my worst with no make-up on and just generally looking ill. I love that. He doesn’t have to do much and I suppose he is another person who motivates me and inspires me to keep myself well and to do and try everything and never give up, because I want that future I dream of and to live my life normally.

My sunshine ☺
i love you <3


Take Care, Soph xoxo

View Post

Day 13

Good afternoon all,

It looks like a beautiful sunny day outside and then you step out and it's bloody freezing :(
Today’s is interesting blog is quite interesting. It has to be a picture of something you hate and there are a few things I hate about the way I look, about certain foods and what people choose to do. I decided to do something a little personal though as I bare all in these blogs and share everything with you all. I might as well do this blog on something I hate about my body. Something I usually try to cover up and hide as I dislike them that much.
So here is today’s blog:


A Picture Of Something You Hate:-



This is a picture of nail clubbing. I think in some patients one of the physical signs of cystic fibrosis is clubbing of both the toe and fingernails. Digital clubbing is a condition in which the tips of fingers or toes have a large amount of excess tissue. This results in the nail bed taking on a curved appearance. Looking at the hand from the side can easily recognize the rounding of fingertips.
The precise cause of this condition hasn’t ever been defined I don’t think, however, I know that it also occurs in people with other serious lung disease such as emphysema, lung cancer, or bronchiectasis. Apparently it’s thought that the formation of the excess tissue has something to do with the body's imbalance of proteins that stimulate muscle growth.
Fingernail clubbing is usually present throughout a person's life. It is not an accurate gauge of the severity of lung damage in cystic fibrosis patients. The extent of the clubbing is different for almost every individual, and doesn't progress as the disease progresses. There is no way to treat or reverse the clubbing of nails, but it is also a benign symptom.
I’ve always been aware that my nails were different however when I got into juniors at primary school people picked up on a little more and I wasn’t particularly picked on but they’d just mention that my nails were different and obviously kids will be kids as they don’t know any better so my nails often got referred to being the same as ‘witches nail’
I was only young though and as I got on with everyone and nobody was ever ‘bullying’ or saying it nastily it didn’t really bother me. I usually laughed and told them they best be nice to me or I’d use my ‘witch nails’ to put a spell on them and then we’d all laugh ☺

Then I remember once in school a beautician had come in and a few of us were lucky enough to have a special treatment. We could choose from having a hand massage or having our nails done. I decided I wanted my nails painted as all my friends were also having this done and only the lads tended to have the hand massage. I walked into the room; bare in mind I was in year 6 so this I was around the age of 10. She smiled and asked what color I’d like. She then lifted my hand and was staring at my nails. She asked what was wrong with them. I told her nothing. Remember I was ten and they were normal to me!
She just continued to stare at them as she was putting some moisturizer on my hands and then asked if I was sure there was nothing wrong with them. I got quite upset about it and just got up and walked out. I went to the bathroom and stared at my nails for till it was time for dinner.
Ever since that say I’ve just been really shy and sensitive about my nails and anyone who comments on them. I know it’s silly and I shouldn’t take it to heart but I can’t help it. That stupid girl who had just come out of college really knocked my bloody confidence as far as my nails go.



As you can see from the picture, (which I am hating putting up but might as well bare everything right?), my nails are quite severely clubbed and that means I cant wear acrylic nails or anything like that.
So I hate my nails.

Take Care, Soph xoxo

View Post

Day 11 & Day 12

Hello Everyone!

Day 11 & Day 12 shall be on today’s agenda as yesterday I was very busy for once!
When I eventually had time to write it, I was knackered and fell asleep instead. Apologies to all those who we’re let down by this.. *cough* Uncle Neil *cough*

So yesterday I ran some more very important errands with Chelsey and then said goodbye to her as she was going to Kent. My mum came home from work later that afternoon so we went for a walk around the garden centre and then to pick my sister up from school; we then went to Asda and then when my dad came home soon after, we went riding!
Yes.. I went riding for the first time in AGES!
It was great, I’d have thought I’d have forgotten how to after so long but nope, it was easy and it was enjoyable. It was abit chilly willy, but that wasn’t too bad ☺
It was teatime, then bath time and then feed time; which I fell asleep whilst being on. And then finally BEDTIME!
So as you can see, no time for day 11 yesterday!

Here are both Day 11 & Day 12:


Day 11:- A picture of a celebrity you have a crush on.



This is Adam Garcia. I suppose my crush isn’t half as bad as it was when I was in my younger teens and the film coyote ugly had come out and was my favourite film of all time! Adam Garcia was the leading male role and was probably the main reason I would quite happily sit and watch the film over and over, and over, and over again. I think he is currently seeing an actress called Amelia Warner.
He is from Australia, he can sing, dance and act! He has dark hair and blue eye <3
Things I like are dark hair, blue eyes and a nice smile. I think he’s good looking but I wouldn’t call it a crush anymore :’)
Day 11 was a rubbish one as I don’t really have a crush on a celebrity so atleast you all didn’t miss out on anything :D

-------------------------------------------------------------------------------------------------------

Day 12:- A Picture Of Something You Love.



This is Roxie Wheeler ☺
She is a Teacup Yorkshire Terrier. She’s 11 month old which in dog years makes her nearly 7 years old! She is a very loving dog who enjoys being cuddled and someone tickling her belly.
I had been shown a picture of teacup yorkies and fell in love with them just before my 17th birthday last year so I begged my mum and dad for one but I had a feeling I wouldn’t be allowed one. So when I got let out of hospital on the 8th of July (the day before my birthday) I was sat eating my tea in the front room. I heard my dad walk in from work and he was talking to my mum in the kitchen. Suddenly in walked this tiny little teacup yorkie puppy! She was teeny tiny! I couldn’t believe I’d got her. I really wanted to call her Alfie but nobody would let me as they insisted that was a ‘boys only’ name! So I chose Roxie from my favourite musical, ‘Chicago’.

Roxie has her own facebook profile that I created whilst in hospital, boredom leads you to do some crazy things.
She is the cutest dog in the world.. believe me. She doesn’t really enjoy going out for wee when it’s raining, windy and cold. So she’ll stand as close to the backdoor outside as possible. She runs upstairs when you’re on the loo or in the bath to keep you company.. but be careful because she likes having a bath and would quite easily and happily jump in and join you. For a teeny, tiny dog she can jump high! Her favourite toy in the world is her ‘foxy lady’. It’s just a little fox teddy and it’s her baby :’)
She has a pink blanket which she sleeps on every night and is very protective over. She doesn’t like anybody approaching our house so she sits at the window on guard and waits for someone to come near it and then barks at them furiously!
I love Roxie as she keeps me company while i’m at home on my own all day, she gives me cuddles when I need them, she keeps my feet warm when she falls asleep on them and in the mornings she runs up into my room and jumps on my bed to wake me up and then lies there with me for abit and sits with me while I do my physio. She’s adorable but naughty at times!

<3 I love my little babe.

Take Care, Soph xoxo

View Post

Day 10

Hello everyone,

Well my luck ran out yesterday at clinic.. I should’ve kept shut! Must’ve jinxed it huh? ☺
Never mind! I have put 2 kilo’s on which is good news and they are very happy & impressed about that. However, my lung functions were down slightly. I’m happy about the weight though. Proves that having the PEG feeding tube and feeding near enough every night is obviously paying off and is all worthwhile.
I never expected miracles and I still don’t but If it helps me gain a little bit of weight and maintain it, that’s miles better than losing it and struggling to gain it back again.
Overall, the doctor thinks I am in need of IV’s so when a bed becomes available I’ll be getting a phone call to pack my bags and “come on down to..”
Costa Del Wythenshawe, Hotel Pearce Ward!
Another 2 week break at the lush resort! I make it sound heavenly huh? ;)
They were impressed and happy with me overall but I don’t know.. maybe I had my heart set on having 6 week out as little part of me felt abit gutted.

Not really done much today. The sun has been shining and I always feel like I really want to go out and do something amazing when it’s lovely looking weather but as soon as you step outside you soon realize it’s chilly todger out there!! Freezing cold unfortunately isn’t it!? Crappy North West weather!
Instead I went out for lunch with my mum and so that was really nice and I managed to walk round Tesco without my chair and I didn’t feel breathless or have to stop for a breather while coughing so that made me feel real good.

Here is today’s instalment of the ’30 day photo challenge’:


Day 10:- A Picture Of You When You Were Little.




Right I’m really hoping that the first photo you shall be seeing is me as a baby with a bonnet on my head! When I was little my mum and dad loved dressing me in little dresses with matching hats and baby bonnets and stuff. There are tons of them stuffed in my wardrobe still. I was a little ginger salty baby when I was little :’)
With a potbelly, obviously caused by my poor digestion. I think I was the cutest thing I have ever seen to be honest with you all. Sure you’ll all agree? ;)

Okay the next picture is my first school photo. Here I have creatively cut my own fringe the night before and erupted in cold sores. Oh how considerate of my younger self?
A messy fringe, a couple of pigtails and a cute button nose and the disaster that was me after trying my hand at being a hairdresser is transformed into a decent school kid I reckon.
Not bad mum! You saved the day!
I think it’s fair to say I was an utter nightmare when I was little which is unbelievable I’m sure those who know me will gladly tell you all. ;)
No seriously I was horrid. I was naughty. I was gobby. I didn’t care about school pupils or share my toys with them. I swore like an extra off shameless!
My language was terrible for such a young, dainty little thing. Credits to my papa. I believe I had a mile case of tourettes to be fair, I seemed to have this need to run behind the sofa and rhyme off every swear word I could possibly think of and then I’d step out from behind the sofa all refreshed as if nothing had just occurred.
I used to swear at my mum, my grandma, my auntie.. Everyone! People laughed though and so I carried on as I knew I got the attention. One day though people stopped laughing and started shouting and so the swear words stopped and I don’t really swear anymore. I don’t really see the need.
So there you have it, I was a little bugger when I was younger but I was cute and got away with it ;)

If only I stayed as you cute as that forever! :’)

Take Care, Soph xoxo

View Post

Day 9

Good Morning Everyone,

Shhhh! Don’t tell anyone but this is my fifth week out of hospital. This hasn’t happened in a very, very long time. I haven’t even felt the need for IV’s and although my clinic appointment is at 3.15 this afternoon, I am hoping they will agree with me that the need for IV’s just isn’t urgent at the moment and allow me to go onto my 6th week out of hospital and continue on with some orals! Fingers crossed guys! I haven’t wanted to say anything on my previous posts for fear of ‘jinxing’ it. So I kept my mouth shut but the day has come for my fate of freedom to be decided by whomever I see at clinic. You shall all be informed in tomorrows post so stay tuned guys!

On with today’s photo challenge and may I just say.. whatever I write for the chosen people will never suffice for how grateful and thankful I am to them. Nor how much love and respect I have for them both. Words just can’t describe that kind of thing.. not really.


Day 9:- A Picture Of Someone Who Gets You Through The Most.





So I can’t have one without the other because when it comes to this.. they’re a team! When it comes to needing them, I need them both and when I need them the most.. they’re both there for me without shadow of a doubt.
My mum and dad are the people who get me through the most.
They’ve gotten me through the past 17 & a half years of life.

They’ve bought me every “Mr Men & Little Miss” book going. They’ve laughed at my naughtiness during lower primary school. They’ve watched me win perfect badge on Friday mornings at primary school. They’ve attended the awards ceremony in which I took home ‘Head Teachers Award’. They’ve payed for lessons and allowed me to become a great horse rider at a very young age. They’ve watched me take home 1st and 2nd place rosettes and trophies for show jumping at the tender age of 12. They’ve watched me sing & dance my little heart out to Britney Spears. They’ve took me on holiday nearly every year of my life. They’ve allowed me to inherit both intelligence and beauty ;)
They’ve given me everything I could ever want, need and have. They’ve taught me manners and respect.

On the other hand, they’ve wiped the tears, sweat and blood from my body in times or despair, devastation and struggle. They’ve counted every second of every minute, of every single hour go by whilst I’ve been in theatre having a major operation. They’ve cried for me when my dreams and hopes come crashing down or crumble to a complete standstill. They’ve stuck it out when all my other friends dwindled off. They’ve re-built my self-esteem and optimism when it has been smashed to smithereens by another knock back from my health. They’ve spoken words that make my darkest and worst days seem a little brighter and happier. They’ve offered me and endless amount of love and support. They’ve built, moulded and shaped me into the girl I am today and the woman I will become.

They are my mum and dad. They are what keep me so determined.
I LOVE YOU BOTH ALL THE WORLD AND BACK AGAIN LOTS OF TIMES <3
xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

Take Care, Soph xoxo

View Post

Day 8

Good Evening!

Tonight is a late one eh? Been quite busy today running errands with Chelsey and then we had lunch out.
Thought I’d take the time to do day 8 while my dad had football on the telly. On with todays photo:

Day 8:– A Picture Of Someone Who Makes You Laugh.




Today’s pictures are none other than my younger sister Miss Bethany Paige.


Nobody makes me laugh like she makes me laugh. I can laugh at things that she says and does that if somebody else did I’d find unammusing. I don’t know what it is about her, she’s just a funny kid and she knows my sense of humour to a T!
Whether its her telling me some kind of joke, telling me a funny story about her day or her tanting and sulking like only miss wheeler can I can be in stitches and she’s the only person in the world who makes me loosen up and laugh till I cough & choke. I can’t help but giggle as she struggles to tell me something through laughing herself.
Her actions and voices as she reinacts something that’s happened is also hilarious. She’s going to be a great comedy actress one day, I swear to you!

She’s going to kill me for this but she was in an all-in-one sleep suit one day and for one reason or another had been told off, so she set off sulking and stormed into my room looking for me to take her side of the story I suppose; I’d heard the whole thing unravel and knew Beth was in the wrong and was just stropping so I set off laughing at her as she threw herself on my bed face down and flung her arms and legs in the air whilst screaming and crying in frustration and dramatic effects. The look of her in an oversized ‘baby grow’ sulking like a fully-grown baby tipped me over the edge and I erupted with laughter. Laughter I’d never allowed myself to drown in before. A full on belly laugh that hurt and made tears stream down my face and I could not stop! This made Beth rage even more and cry and scream more. Which just fuelled my laughter.
Take my word for it.. it was the funniest thing I have ever seen in my life!

I do love her though and when I need to just laugh away some worries or sadness she manages to make that happen, even when I feel like nothing or nobody in the world can. She’s special and I don’t think I’d be half as strong as I am if it wasn’t for her. She looks out for me and takes care of me even If she does drive me round the bend sometimes. I’d do anything for her and would put my life on the line for my boogle. She sometimes is forced to put me first when I’m suddenly admitted to hospital etc and that’s something that can’t be helped but she never sulks, whinges or moans about that and she’s so tough and strong. I think she could put some of us to shame with how well she copes with things. Nothing fazes the kid.
Overall though; she’s my personal comedian so back off!
I LOVE YOU BOOGLE <3

Take Care, Soph xoxo

View Post