Day 20

Feeling pretty popular to be honest with you all, i noticed i have had over 400 views on my Day 19 blog.
I was so shocked and impressed by that. That's 400 people interested in what i have to say.
400 people that have been reminded of organ donation reading that blog. 400 people that have a little more insight into my life with my Cystic Fibrosis.

My doctor came in today just to make sure i was still wanting to go through with everything before he sent the letter off. Of course i said yes so the letter has now been sent off to the transplant team and now i just have to sit and wait to hear something in around 4-6 week.
I am going to estimate that i'll probably be on the ward when they have time to see me.

Today i was took off promixcin and trialled on a new antibiotic nebuliser called Azetreonam.
We're hoping this does more than what promixcin did for me.. which was NOTHING!

Here's the news we have all been waiting for.....

I AM GOING HOME TOMORROW!!!

my lung functions are back down again to 0.85 from 0.9 so not a huge difference but i have been in for 5 week now, it is most definitely time to go home for a bit and i am even off on a little holiday to visit family over the Easter Weekend in Essex so that will be lovely. I am really looking forward to it.

I have a few things i want to do while i am out:

• i want to get a gym ball as have been doing some exercises with physio using the ball and i want to keep them up.
• i want to eat TGI's, Subway, A cooked chicken from tesco, Florida chicken and dippy egg & soldiers.
• i want to go to the trafford centre and hunt a new sweet shop down that i have been told is a recent addition there. So going on Saturday with Emily :)
• i want to get back into the gym.
• i want to HOPEFULLY start my college course that i was supposed to start when i came in.
• i want to buy some things for my new room at my dads, new bedding etc.
• i want to get a bit more creative
• i want to go clothes shopping with my papa one day, he is good at clothes :)
• i want to go to bingo!
• i want to go to a quiz night and pretend i am on the chase :)
• i want to go for a little drive somewhere nice
• i want to continue playing my billy bob ukulele!
• i want to hear my dad's band play again :)
• i want to attend Alfie's first birthday party
• i want to go swimming with my sister
• i want to take my sister out more, just me and her

so that should keep me busy for the 2 or 3 week i get out!

have to squeeze Essex into there for a few days too!

Day 20: above

when i lay back on my hospital bed, the thing i see above me is white tiles.

in this room, there are 48 tiles.. i counted them whilst unable to sleep one night

7 tiles length ways and 9 tiles width wise but then the some of the room is cut short by the en-suite bathroom. 

i used to always say when i got my own house, i wanted a room painted black, with black out curtains, nothing in the room but cushions, pillows and bean bags and blankets and on the roof, i wanted lots of little lights drilled in the ceiling to create a starry sky effect. 

i just think it would be such a lovely room to go and relax in and probably fall asleep in too. 

when you look outside at night now, you're lucky to see a couple of stars.. it makes me sad :( 

so i thought if you cant see the stars at night, see them all the time in an artificial night sky room! 

sweet dreams bedbugs.. 

sophie xoxo

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